Cystic Fibrosis

Introduction Task Process Resources Evaluation Conclusion

PROCESS

First, you will be assigned as one of a team of 3 students who are portraying nurses on a pediatric respiratory unit. You will pick one of three expert roles within the team.

Once you've selected an expert role to play, you may pursue your role individually until you have collected the information needed to prepare the materials as a team for completion of this task. You are encouraged to share the resources you accumulate during your search with your team members, as this will facilitate completion of the group patient education materials and PowerPoint presentation. Here are the individual components of each expert role:

Clinical Practice Expert – Using journal articles and web resources, research the clinical aspects of cystic fibrosis. Answer the following questions. Your answers should be of sufficient detail – somewhere between 4 to 8 sentences in length – and should be documented on the web page that will be made available for your team.

  1. Which organizations provide information to parents about caring for their child with cystic fibrosis?
  2. What does research say about health problems related to cystic fibrosis?
  3. Describe how evidence-based practice guidelines are developed.

Diversity Expert – Using journal articles and web resources, research the cultural/ethnic aspects of a child with cystic fibrosis. Answer the following questions. Your answers should be of sufficient detail – somewhere between 4 to 8 sentences in length – and should be documented on the web page that will be made available for your team.

  1. Which organizations and individuals have been at the forefront of exploring cultural / ethnic diversity in family support for children with cystic fibrosis?
  2. Describe how cultural differences can affect how the parent cares for a chronically ill child.
  3. Describe the research articles in relation to cultural /ethnic groups and a chronic illness: cystic fibrosis.

Patient Education Expert – Using journal articles and web resources, research the patient education aspects of caring for a child with cystic fibrosis. Answer the following questions. Your answers should be of sufficient detail – somewhere between 4 to 8 sentences in length – and should be documented on the web page that will be made available for your team.

  1. Which organizations have developed patient education materials for children with cystic fibrosis?
  2. Describe the manner in which your team will educate Ms. G on providing the care her daughter requires at this time and in the future.
  3. Describe important issues to consider when developing patient education materials.

Organizing Information As You Go

Type your individual role questions into a Microsoft Word document so that you can add information to them as you explore journal articles and websites.

Keep your desired products in sight and organize your work around these things:

Visit the RESOURCES section next to view some web, library, and collaboration resources that will launch you in completing your task!

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